Williams Institute Reading Room: Lesbian, Gay, Bisexual and Transgender Resources in Law and Public Policy: Intersex

From intersex activist Pidgeon Pagonis comes a candid and life-affirming true story of identity, lies, family secrets, and the healing power of truth. Pidgeon Pagonis always felt like their life was a constant attempt to fit in with other girls--a feeling that was only exacerbated when puberty failed to hit. They never understood why...until they uncovered the secret that had haunted their childhood. Bouncing between their Chicago home and the city's children's hospital, Pidgeon weathered a series of traumatic surgeries, fabrications, and misdirections. It wasn't until college that Pidgeon pieced together the puzzle of their identity: they'd been born intersex but raised as a girl, their life shaped by lies that left them physically and mentally scarred. But for Pidgeon, what began as a shameful and traumatic discovery transforms into a painful yet joyous journey of self-love, truth, and healing. Pidgeon's inspiring memoir is for everyone whose body and spirit defy expectations, a fierce challenge to a system hell-bent on enforcing binary definitions. Ultimately, it's a celebration of the freedom and empowerment that come from learning the truth about who you are--and living it.

Olympian and World Champion Caster Semenya is finally ready to share the vivid and heartbreaking story of how the world came to know her name. Thrust into the spotlight at just eighteen years old after winning the Berlin World Championships in 2009, Semenya's win was quickly overshadowed by criticism and speculation about her body, and she became the center of a still-raging firestorm about how gender plays out in sports, our expectations of female athletes, and the right to compete as you are. Told with captivating speed and candor, The Race to Be Myself is the journey of Semenya's years as an athlete in the public eye, and her life behind closed doors. From her rural beginnings running free in the dust, to crushing her opponents in record time on the track, to the accusations and falsehoods spread about her in the press, the legal trial she went through in order to compete, and the humiliation she has been forced to endure publicly and privately. This book is a searing testimony for anyone who has been forced to stop doing what they love.

From a celebrated activist on the forefront of fighting for intersex representation and rights--and a subject of the forthcoming documentary Every Body, from the filmmakers behind RBG--a funny, thought-provoking collection of essays about owning your identity and living your truth. Two percent of the world's population--the same percentage of humans who have naturally red hair--is born intersex. Yet many people aren't even familiar with the word. Intersex individuals are born with both male and female reproductive organs, yet many are stripped of their identity at birth when a parent designates M or F on a birth certificate. That subjective choice is often followed by invasive, life-changing surgeries, performed without the individual's consent. Intersex people have become a target of politicians, attacked for who they are and threatened by legislation that attempts to categorize and define them. Alicia Weigel is fighting back against the hate and fearmongering to protect the rights and lives of everyone. In this book, she boldly speaks out about working as a change agent in a state that actively attempts to pass legislation that would erase her existence, explores how we can reclaim bodily autonomy, and encourages us to amplify our voices to be heard. Disarming, funny, charming, and powerful, this is a vital account of personal accomplishment that will open eyes and change minds.

This edited collection interrogates how social and cultural representations of individuals with intersex variations impact how they are understood and treated from legal and medical perspectives across the world. Contributors consider how novelists, filmmakers, artists, and medical professionals have represented people with intersex variations, and highlight the importance of ethical representation and autonomy to encourage wider cultural and medical knowledge of intersex variations as a naturally occurring phenomenon. The text also examines the ways in which individuals with intersex variations are represented and viewed in India, Italy, Pakistan and Israel, as well as how this impacts decision making for the individuals, families and medical providers. This book argues that reactions to intersex variations will not change unless they are no longer presented as treatable disorders. It positions representation at the forefront, shifting the emphasis away from a concern for maintaining gender norms to upholding the human rights of intersex people. This volume will be of interest to researchers and scholars in intersex studies as well as policymakers and activists.
*Also available online (UC users only)

This renowned history of intersex in America has been comprehensively updated to reflect recent shifts in attitudes, bioethics, and medical and legal practices. In Bodies in Doubt, Elizabeth Reis traces the changing definitions, perceptions, and medical management of intersex (atypical sex development) in America from the colonial period to the present. Arguing that medical practice must be understood within its broader cultural context, Reis demonstrates how deeply physicians have been influenced by social anxieties about marriage, heterosexuality, and same-sex desire throughout American history In this second edition, Reis adds two new chapters, a new preface, and a revised introduction to assess recent dramatic shifts in attitudes, bioethics, and medical and legal practices. Human rights organizations have declared early genital surgeries a form of torture and abuse, but doctors continue to offer surgical "repair," and parents continue to seek it for their children. While many are hearing the human rights call, controversies persist, and Reis explains why best practices in this field remain fiercely contested.

This comprehensive yet accessible resource provides readers with everything they need to know about intersex - people who are born with any range of sex characteristics that might not fit typical binary notions about male and female bodies. Covering a wide variety of topics in an easy-to-read way, the book explores what intersex is, what it is not, a detailed overview of its 40 or so different variations, historical and social aspects of intersex and medical intervention, along with practical, proven advice on how professionals can help and support intersex people. Written by an intersex man with over 65 years of first-hand experience, this book is an ideal introduction for any medical, health and social care professional or student, as well as family members and friends, seeking to improve their practice and knowledge.

Meet Kimberly, a regular suburban housewife and mother, whose discovery later in life that she was born intersex fueled her to become an international human rights defender and globally-recognised activist. Charting her intersex discovery and her journey to self-acceptance, this book movingly portrays how being intersex impacted Kimberly's personal and family life, as well as her career. From uncovering a secret that was intentionally kept from her, to coming out to her family and friends and fighting for intersex rights, her candid and empowering story helps breakdown barriers and misconceptions of intersex people and brings to light the trauma and harmful impact medical intervention continues to have on the intersex community. Written from a non-queer perspective, and filled with much-needed, straightforward information and advice about what it means to be intersex, this is a vital and timely resource for intersex people and their families, as well as the general reader.

This transformative guide completely breaks down our current understanding of biological sex and gender diversity. Introducing readers to seven variations of human sex, commonly considered intersex, the book challenges the myth that sex and gender are exclusively binary and explores the inherent diversity of biological sex and its relationship to gender identity and expression, and the impact this has on society. Examining historical, linguistic and socio-cultural understandings of sex and gender, as well as genetic and scientific definitions, the book is an important resource for dismantling gender and sexuality-based discrimination and promoting understanding and inclusivity. Co-written by one of the world's leading intersex activists and a highly respected scholar in biological sciences, and accompanied with detailed anatomical illustrations throughout, this pioneering text is the essential introduction to gender and sex diversity for gender studies, women's studies, biology and genetics courses, as well as professionals working with intersex and trans communities.

This book addresses intersex rights violations and analyses intersex people's legal demands as expressed by intersex activists themselves and delivered through statements and reports issued by intersex rights organisations, the United Nations and the Council of Europe. Intersex people are born with sex characteristics that do not fit typical notions of male or female bodies, as a result of which they are stigmatised, marginalised and denied the recognition of their fundamental rights. Often, they are subjected to involuntary and harmful sex "normalising" surgeries at birth, which violate their bodily integrity, self-determination and informed consent, so as to comply with societal and legal norms. Moreover, binary legal frameworks prevent them from enjoying the rights to access identification documents, start a family, or be free from discrimination in all areas including employment and sports. To elaborate on intersex violations that emanate from binary laws, this book examines the situation of intersex rights in regional jurisdictions worldwide and within the European Union in particular. In the process, it identifies current legal barriers and suggests how intersex people could be accommodated under legal frameworks and achieve sex/gender equality beyond binary definitions.
*ebook (UC users only). Also print, Young Research Library.

From one of the world's foremost intersex activists, a candid, provocative, and eye-opening memoir of gender identity, self-acceptance, and love.
"My name is Hida Viloria. I was raised as a girl but discovered at a young age that my body looked different. Having endured an often turbulent home life as a kid, there were many times when I felt scared and alone, especially given my attraction to girls. But unlike most people in the first world who are born intersex--meaning they have genitals, reproductive organs, hormones, and/or chromosomal patterns that do not fit standard definitions of male or female--I grew up in the body I was born with because my parents did not have my sex characteristics surgically altered at birth. It wasn't until I was twenty-six and encountered the term intersex in a San Francisco newspaper that I finally had a name for my difference. That's when I began to explore what it means to live in the space between genders--to be both and neither. I tried living as a feminine woman, an androgynous person, and even for a brief period of time as a man. Good friends would not recognize me, and gay men would hit on me. My gender fluidity was exciting, and in many ways freeing--but it could also be isolating. I had to know if there were other intersex people like me, but when I finally found an intersex community to connect with I was shocked, and then deeply upset, to learn that most of the people I met had been scarred, both physically and psychologically, by infant surgeries and hormone treatments meant to "correct" their bodies. Realizing that the invisibility of intersex people in society facilitated these practices, I made it my mission to bring an end to it--and became one of the first people to voluntarily come out as intersex at a national and then international level. Born Both is the story of my lifelong journey toward finding love and embracing my authentic identity in a world that insists on categorizing people into either/or, and of my decades-long fight for human rights and equality for intersex people everywhere."

This book provides a basis for discussion regarding all legal aspects concerning persons born with sex characteristics that do not belong strictly to male or female categories, or that belong to both at the same time. It contains contributions from medical, psychological and theological perspectives, as well as national legal perspectives from Germany, Australia, India, the Netherlands, Columbia, Sweden, France and the USA. It explores international human rights aspects of intersex legal recognition and also features chapters on private international law and legal history.

A Human Rights Watch report; also available online.

A Human Rights Watch report; also available online.

*At Young Research Library.
Analyzes intersex debates through a queer feminist, intersectional, and transnational lens.

*At Young Research Library.
When sociologist Georgiann Davis was a teenager, her doctors discovered that she possessed XY chromosomes, marking her as intersex. Rather than share this information with her, they withheld the diagnosis in order to "protect" the development of her gender identity; it was years before Davis would see her own medical records as an adult and learn the truth. Davis' experience is not unusual. Many intersex people feel isolated from one another and violated by medical practices that support conventional notions of the male/female sex binary which have historically led to secrecy and shame about being intersex. Yet, the rise of intersex activism and visibility in the US has called into question the practice of classifying intersex as an abnormality, rather than as a mere biological variation. This shift in thinking has the potential to transform entrenched intersex medical treatment. In Contesting Intersex, Davis draws on interviews with intersex people, their parents, and medical experts to explore the oft-questioned views on intersex in medical and activist communities, as well as the evolution of thought in regards to intersex visibility and transparency. She finds that framing intersex as an abnormality is harmful and can alter the course of one's life. In fact, controversy over this framing continues, as intersex has been renamed a 'disorder of sex development' throughout medicine. This happened, she suggests, as a means for doctors to reassert their authority over the intersex body in the face of increasing intersex activism in the 1990s and feminist critiques of intersex medical treatment. Davis argues the renaming of 'intersex' as a 'disorder of sex development' is strong evidence that the intersex diagnosis is dubious. Within the intersex community, though, disorder of sex development terminology is hotly disputed; some prefer not to use a term which pathologizes their bodies, while others prefer to think of intersex in scientific terms. Although terminology is currently a source of tension within the movement, Davis hopes intersex activists and their allies can come together to improve the lives of intersex people, their families, and future generations. However, for this to happen, the intersex diagnosis, as well as sex, gender, and sexuality, needs to be understood as socially constructed phenomena. A personal journey into medical and social activism, Contesting Intersex presents a unique perspective on how medical diagnoses can affect lives profoundly.
*Also eBook (UC only): Contesting Intersex

*eBook (UC only).
Putting the ethical tools of philosophy to work, Ellen K. Feder seeks to clarify how we should understand "the problem" of intersex. Adults often report that medical interventions they underwent as children to "correct" atypical sex anatomies caused them physical and psychological harm. Proposing a philosophical framework for the treatment of children with intersex conditions--one that acknowledges the intertwined identities of parents, children, and their doctors--Feder presents a persuasive moral argument for collective responsibility to these children and their families.
*Also available in print: Making Sense of Intersex

Also available as an e-Book (UC users only): Intersexuality and the Law

*At SRLF.

*At Biomed library.